Jesy Nelson Reveals Rare Disorder Could Prevent Her Twin Daughters From Walking

Jesy Nelson has shared a deeply emotional update regarding the health of her twin daughters, revealing a challenging path ahead for her family.

On Sunday, January 4, the former Little Mix star took to social media to post a video detailing the medical journey of her eight-month-old girls, Ocean Jade and Story Monroe. In the moving clip, the 34-year-old singer disclosed that the twins have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a severe and rare genetic condition.

“We were informed that they will likely never be able to walk,” Nelson shared through tears in the Instagram post. She explained that the girls might never gain sufficient neck strength, resulting in permanent physical disabilities. Despite the devastating news, Nelson expressed profound relief that they have begun medical intervention. “I am so incredibly grateful they have received treatment, because without it, they wouldn’t survive,” she added.

Nelson opened up about the intensive nature of their daily lives, noting that she has had to adopt the role of a full-time nurse. Her responsibilities now include managing breathing apparatus and various complex medical procedures that she says “no mother should ever have to handle.”

Following the announcement, the singer received a wave of support from the entertainment community. JoJo Siwa was among those offering comfort, commenting, “Sending lots of love and prayers,” accompanied by heart emojis.

According to the Cleveland Clinic, Spinal Muscular Atrophy is a hereditary neuromuscular ailment that causes muscles to weaken and atrophy. SMA Type 1 is the most prevalent form, representing about 60% of all cases, with symptoms typically manifesting within the first six months of life. While a definitive cure remains elusive, specific medications and therapeutic approaches are essential for managing the condition’s progression.

Nelson and her fiancé, Zion Foster, celebrated the arrival of their identical twins on May 15, 2025. The infants were born prematurely at 31 weeks following a high-risk pregnancy involving monochorionic/diamniotic complications, where twins share a placenta but reside in separate amniotic sacs.

The singer emphasized that her decision to go public was driven by a desire to educate other parents who might notice similar developmental red flags.

“If I can raise awareness and highlight the warning signs, then perhaps some good can come from this situation,” she noted. She urged parents to watch for symptoms such as rapid abdominal breathing, a “frog-like” leg posture, and an inability to support their own weight.

“If you see these signs in your child, please seek medical attention immediately,” Nelson pleaded. “Time is absolutely critical, and early treatment is the key to ensuring they have the best possible quality of life.”

View Jesy Nelson’s full health update below.

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